InSup-C Work Packages
A brief description of the roles of each Work Package is listed here, along with the Work Package lead.
This work package was responsible for the management of contractual, administrative and scientific issues relating to the project.
Main responsibilities included: Management of the project consortium; management of project finances; management of legal issues.
This work package involved a systematic literature review of existing evidence for integrated palliative care in Europe, led by Prof Dr Johan Menten in collaboration with other project sites in the UK, Germany, Hungary, Spain and The Netherlands. The review (in three parts) focussed on evidence of integrated palliative care models across Europe in cancer and chronic disease and also assessed evidence of integrated approaches in guidance and pathway literature related to these illness groups.
Drawing on the literature review conducted in WP2 – this work package developed a taxonomy of existing general palliative care models across Europe and contributed to the identification of models and initiatives for integrated palliative care. This work stream was led by Prof. Dr Lukas Radbruch and involved collaboration with an expert panel of advisors and consultation with a wider audience of those involved in palliative care across the continent. The results from WP3 were used to identify those models of integrated palliative care examined in more detail in WP4.
Researchers in the countries where patient and carer experience were examined, (The Netherlands, Belgium, Hungary, Germany and the United Kingdom), followed patients and carers as they ‘journeyed’ through palliative care services. Led by Dr Marieke Groot, the study focussed on people with advanced cancer and those with advanced chronic obstructive airways disease and late-stage chronic heart failure. Using interviews, questionnaires and observational methods, data was gathered and collated to establish a comprehensive view of integrated palliative care from the service user standpoint.
Drawing on outcomes from the reviews (WP2), taxonomy (WP3) and the service user experience (WP4), this work stream benchmarked existing integrated palliative care initiatives across Europe and identified requirements for best, good and promising practice. In collaboration with colleagues in Spain and the USA, it also considered how the European experience compared with that of the United States at health system level. WP5 was led by Dr Jeroen Hasselaar at Radboud University in The Netherlands, with the aim to publish a book of examples of best practice as part of its remit.
Professor Sheila Payne and her team at Lancaster University, UK, focussed on dissemination activities throughout the project. There were six objectives including this website which, using outcomes from other work packages, developed a service benchmarking checklist plus a highly-successful Massive Open Online Course, (MOOC), which ran over 3 years.
In the final year, an invitational conference was held at the European Parliament to promote the results of the study to policy and decision makers at the highest level.