InSup-C Publications

Publications arising from the InSup-C project are listed below.

Some of the publications can be downloaded directly from this website. Others are linked to their respective journal where selecting the link will take you to their parent website in order to download a copy free of charge, unless otherwise stated.

e-Books
Journal Articles

Ethical and research governance approval across Europe: Experiences from three European palliative care studies
Preston, Nancy; van Delden, Johannes JM; Ingravallo, Francesca; Hughes, Sean; Hasselaar, Jeroen; van der Heide, Agnes; Van den Block, Lieve; Dunleavy, Lesley; Groot, Marieke; Csikos, Agnes; (2020) In: Palliative Medicine. 2.69E+14
View publication

Disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice
Preston, Nancy; Hasselaar, Jeroen; Hughes, Sean; Kaley, Alex; Linge-Dahl, Lisa; Radvanyi, Ildiko; Tubman, Phil; Van Beek, Karen; Varey, Sandra; Payne, Sheila; (2020) In: BMC palliative care. 01-Aug
View publication

Recommendations on priorities for integrated palliative care: transparent expert consultation with international leaders for the InSuP-C project
Payne, Sheila; Hughes, Sean; Wilkinson, Joann; Hasselaar, Jeroen; Preston, Nancy; (2019) In: BMC palliative care. 32
View publication

Integrated palliative care networks from the perspectives of patients: A cross-sectional explorative study in five European countries
den Herder-van der Eerden, Marlieke; Ebenau, Anne; Payne, Sheila; Preston, Nancy; Radbruch, Lukas; Linge-Dahl, Lisa; Csikos, Agnes; Busa, Csilla; Van Beek, Karen; Groot, Marieke; (2018) In: Palliative medicine. 1103-1113
View publication

Developing macroindicators of palliative care development in Africa: a process with in-country and international experts
Rhee, John Y; Garralda, Eduardo; Namisango, Eve; Luyirika, Emmanuel; de Lima, Liliana; Powell, Richard A; Centeno, Carlos; (2018) In: Journal of Palliative Medicine. 342-353
View publication

Integrated palliative care is about professional networking rather than standardisation of care: a qualitative study with healthcare professionals in 19 integrated palliative care initiatives in five European countries
den Herder-van der Eerden, Marlieke; van Wijngaarden, Jeroen; Payne, Sheila; Preston, Nancy; Linge-Dahl, Lisa; Radbruch, Lukas; Van Beek, Karen; Menten, Johan; Busa, Csilla; Csikos, Agnes; (2018) In: Palliative medicine. 1091-1102
View publication

” Never at ease”-family carers within integrated palliative care: a multinational, mixed method study
Ateş, Gulay; Ebenau, Anne Frederieke; Busa, Csilla; Csikos, Agnes; Hasselaar, Jeroen; Jaspers, Birgit; Menten, Johan; Payne, Sheila; Van Beek, Karen; Varey, Sandra; (2018) In: BMC Palliative Care.
View publication

Enhancing integrated palliative care: what models are appropriate? A cross-case analysis
Payne, Sheila; Eastham, Rachael; Hughes, Sean; Varey, Sandra; Hasselaar, Jeroen; Preston, Nancy; (2017) In: BMC Palliative Care. 64
View publication

The palliative care challenge: analysis of barriers and opportunities to integrate palliative care in Europe in the view of national associations
Centeno, Carlos; Garralda, Eduardo; Carrasco, José Miguel; den Herder-van der Eerden, Marlieke; Aldridge, Melissa; Stevenson, David; Meier, Diane E; Hasselaar, Jeroen; (2017) In: Journal of palliative medicine. 1195-1204
View publication

Is the content of guidelines/pathways a barrier for the integration of palliative Care in Chronic Heart Failure (CHF) and chronic pulmonary obstructive disease (COPD)? A comparison with the case of cancer in Europe
Siouta, Naouma; Van Beek, Karen; Payne, Sheila; Radbruch, Lukas; Preston, Nancy; Hasselaar, Jeroen; Centeno, Carlos; Menten, Johan; (2017) In: BMC Palliative Care. 01-Aug
View publication

Towards accessible integrated palliative care
den Herder-van der Eerden, Marlieke; Ewert, Benjamin; Hodiamont, Farina; Hesse, Michaela; Hasselaar, Jeroen; Radbruch, Lukas; (2017) In: Journal of Integrated Care.
View publication

How continuity of care is experienced within the context of integrated palliative care: a qualitative study with patients and family caregivers in five European countries
den Herder-van der Eerden, Marlieke; Hasselaar, Jeroen; Payne, Sheila; Varey, Sandra; Schwabe, Sven; Radbruch, Lukas; Van Beek, Karen; Menten, Johan; Busa, Csilla; Csikos, Agnes; (2017) In: Palliative medicine. 946-955
View publication

Moving the integration of palliative care from idea to practice
Hasselaar, Jeroen; Payne, Sheila; (2016)
View publication

Integrated palliative care in Europe: a qualitative systematic literature review of empirically-tested models in cancer and chronic disease
Siouta, Naouma; Van Beek, Karen; Van der Eerden, ME; Preston, Nancy; Hasselaar, JG; Hughes, Sean; Garralda, Eduardo; Centeno, Carlos; Csikos, Agnes; Groot, Marieke; (2016) In: BMC palliative care. 56
View publication

To what degree is palliative care integrated in guidelines and pathways for adult cancer patients in Europe: a systematic literature
Van Beek, Karen; Siouta, Naouma; Preston, Nancy; Hasselaar, Jeroen; Hughes, Sean; Payne, Sheila; Radbruch, Lukas; Centeno, Carlos; Csikos, Agnes; Garralda, Eduardo; (2016)
View publication

Person-centred palliative care in five European countries: the experiences of patients and family carers
van der Eerden, Marlieke; Hughes, Sean; Varey, Sandra; Ewert, Benjamin; Schwabe, Sven; Busa, Csilla; Kiss, Zsuzsanna; Van Beek, Karen; van Ende, Suzy; Csikos, Agnes; (2016) In: International Journal of Integrated Care.
View publication

Towards integration of palliative care in patients with chronic heart failure and chronic obstructive pulmonary disease: a systematic literature review of European guidelines and pathways
Siouta, Naouma; van Beek, Karen; Preston, Nancy; Hasselaar, Jeroen; Hughes, Sean; Payne, Sheila; Garralda, Eduardo; Centeno, Carlos; van der Eerden, Marlieke; Groot, Marieke; (2016) In: BMC palliative care. 01-Dec
View publication

Education, implementation, and policy barriers to greater integration of palliative care: a literature review
Aldridge, Melissa D; Hasselaar, Jeroen; Garralda, Eduardo; van der Eerden, Marlieke; Stevenson, David; McKendrick, Karen; Centeno, Carlos; Meier, Diane E; (2016) In: Palliative medicine. 224-239
View publication

Building a taxonomy of integrated palliative care initiatives: results from a focus group
Ewert, Benjamin; Hodiamont, Farina; van Wijngaarden, Jeroen; Payne, Sheila; Groot, Marieke; Hasselaar, Jeroen; Menten, Johann; Radbruch, Lukas; (2016) In: BMJ supportive & palliative care. 14-20
View publication

Integrated palliative care in the Spanish context: a systematic review of the literature
Garralda, Eduardo; Hasselaar, Jeroen; Carrasco, José Miguel; Van Beek, Karen; Siouta, Naouma; Csikos, Agnes; Menten, Johan; Centeno, Carlos; (2016) In: BMC palliative care. 49
View publication

To what degree is palliative care integrated in guidelines and pathways for adult cancer patients in Europe: a systematic literature review
Van Beek, Karen; Siouta, Naouma; Preston, Nancy; Hasselaar, Jeroen; Hughes, Sean; Payne, Sheila; Radbruch, Lukas; Centeno, Carlos; Csikos, Agnes; Garralda, Eduardo; (2016) In: BMC palliative care. 26
View publication

Integrated palliative care in the Spanish context: a systematic review of the literature
Centeno, Carlos; Menten, Johan; Csikos, Agnes; Siouta, Naouma; Van Beek, Karen; Carrasco-Gimeno, José Miguel; Hasselaar, Jeroen; Garralda, Eduardo; (2016)
View publication

Experiences of patients, family and professional caregivers with Integrated Palliative Care in Europe: protocol for an international, multicenter, prospective, mixed method study
van der Eerden, Marlieke; Csikos, Agnes; Busa, Csilla; Hughes, Sean; Radbruch, Lukas; Menten, Johan; Hasselaar, Jeroen; Groot, Marieke; (2014) In: BMC palliative care. 52
View publication

 

Special Issues

Special Issue: Integrated care for people with palliative care needs. Palliative Medicine Volume 30, Issue 3, March 2016

Reports

Final Report of the InSup-C Project (2016)