Palliative Care

An EU Framework 7 Programme

Project objectives

Key objectives of the project will be:

  1. Literature review to collect descriptions of integrated care models in cancer and advanced diseases. This will result in an overview of integrated palliative care with regard to patient and – informal‐ caregiver experiences and perceptions at the one hand, and organisational, managerial, financial and regulatory aspects at the other hand. In addition, another review will consider existing guidelines and pathways on cancer and chronic diseases within Europe to consider whether palliative care and integrated care are part of those documents. Grey literature (that is not published in English and in peer reviewed journals) will also be considered together with the results of previous European initiatives like Europall and EAPC Atlas.
  2. To identify existing palliative care initiatives for integrated palliative care in Europe using;
    1. publicly available data and reports from (inter)national European offices on health care, and
    2. additional - qualitative - interviews with experts in the field of primary and secondary care including patient organisations in selected European countries. This will result in a taxonomy (or classification scheme) with a global benchmark of existing integrated palliative care initiatives across Europe with strengths and weaknesses in terms of for example organisation, costs, and patient satisfaction.
  3. To study a representative selection of integrated palliative care initiatives across Europe, involving the experiences and perceptions of patients with cancer and chronic diseases, their informal caregivers, and their primary and secondary caregivers. Also primary and supportive organization processes will be involved (organisation, management, data‐sharing etc). This will be done in a research design mainly based on qualitative semi‐structured questionnaires.
  4. To identify (requirements for) best and/or promising practices in integrated palliative care in Europe in terms of patient/family and caregivers experiences, including key prerequisites of a regulatory, cultural, organisational, financial and managerial background. These 'best/good practices' build on - and will move beyond - the identified existing models in Europe from the taxonomy and the site visits by incorporating network analysis. In addition, required skill mix of health professionals, and opportunities for patient empowerment and digital support (health 2.0) will be formulated.
  5. To disseminate the (requirements for) 'best/good practices' via an interactive website including an e‐learning module based on the data of the research project. The broad consortium of this project reflects a multidisciplinary approach involving partners with a background in palliative medicine, psychology, nursing, health sciences and health policy. The result will yield a balanced analysis of integrated palliative care addressing the structure, processes, and outcome of health care services.
Integrated Palliative Care partners
Integrated Palliative Care partners